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- Feed Preview Social Media Archives - SPM Blog
Fostering Solidarity on the Front Lines Through Stories
Stories are powerful because they foster human connections, transparency, and innovation, ultimately leading to better experiences for those giving and receiving care. Healthcare workers’ persp...
Apparently Only Doctors Can Help on Twitter?
In a piece entitled, “Why Doctors Need to be on Twitter,” Jack Turban, MD and Jessica Gold, MD seem to have transported back in time to a world where e-patients don’t exist. The piece argue...
https://participatorymedicine.org/epatients/2019/12/apparently-only-doctors-can-help-on-twitter.html
Got Candles? Happy 30th Birthday to the World Wide Web!
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of...
Study: Facebook support group increases patient engagement, satisfaction. Who knew?? (Patients.)
No surprise to e-patients: a new study in the journal Surgery found that when patients facing a liver transplant connected with each other, they liked it. Read the article about it in MobiHealt...
Allie Davanzo: The Power of Art in Medicine
This is a guest blog post by Allie Davanzo. Allie was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Allie Davanzo is...
https://participatorymedicine.org/epatients/2017/05/allie-davanzo-the-power-of-art-in-medicine.html
Cleo Kordomenos: How My Opinion on Online Health Communities Changed
This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Cleo Kordomenos...
Teaching Health Communication with Participatory Medicine Highlights
In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu,...
Jody Schoger, co-founder of #BCSM breast cancer community, has passed
We lost a great one today. Jody Schoger @JodyMS was one of the founders of #BCSM (breast cancer social media), the first patient community that started on Twitter and grew into a 501(c)(3) org...
Patient solves difficult diagnosis using … an online image sharing service??
The times, they are a-changin’: medicine is realizing there can be gold found on the internet, amid all the garbage that’s also there. Items: In 2014 a European government started buying G...
Tune in for Patient Reviews of Physicians: The Wisdom of the Crowd?
Patient Reviews of Physicians: The Wisdom of the Crowd? Google Hangout On Air Hosted by David Harlow with Niam Yaraghi and Casey Quinlan Wed, Jun 24, 3:00 PM – 4:00 PM ET Presented by David Har...
Guest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me Off
Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view ...
Great Marie Ennis-O’Connor infographic on live-tweeting an event
E-patients know that social media can be a potent tool for spreading the movement, spreading the message, and connecting with others. Some of us are better at it than others; if you’re looking ...
e-Patient Lisa Adams
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media...
https://participatorymedicine.org/epatients/2014/01/e-patient-lisa-adams.html
Husband-wife pieces in NY Times and The Guardian break ethics and lack a clue (re @AdamsLisa)
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One o...
Response to “We need to talk about TED” from an evangelist’s perspective
The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog....
Regina Holliday: The Walking Gallery film
Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement begins… The post...
https://participatorymedicine.org/epatients/2013/11/regina-holliday-the-walking-gallery-film.html
How do we know that social media is important to health care?
A cross-post from susannahfox.com… On Friday, I spoke at the Albert Einstein College of Medicine, along with Kevin Pho, MD. During a planning call, the symposium organizers had shared results ...
Join #s4pm tweetchat Saturday 10/12 at 3pm ET
We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other...
https://participatorymedicine.org/epatients/2013/10/join-s4pm-tweetchat-saturday-1012-at-3pm-et.html
New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana ...
Lisanne St Onge Klute: The Power of Social Healthcare; Beco...atient and Surviving a Cavernous Malformation of the Brainstem
This guest post was written by Lisanne St. Onge Klute and originally appeared on The Story of iPatchman, a blog for e-patients with brain tumors. It is a great example of the power of social medi...