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This fall, I acquired an Aranet4 CO2 monitor. It's been illuminating to use and has helped me improve a little. Continue reading →
Six months in, I thought I’d give an update on how the pyridostigmine is going. Taking an Increase Hoping pyridostigmine would help me be out of bed more, Dr. Levine asked me to start it at 30 ...
https://nopostergirl.com/2022/08/31/pyridostigmine-part-two/
"If I could leave the kingdom of the sick, I would never be able to forget what it was to be a subject, would always be conscious of, seeing for, those still there." Continue reading →
My sleep regimen includes some unusual homemade magnesium preparations, and I thought other people with myalgic encephalomyelitis might like to know how to make them. Dr. Cheney was a big believe...
https://nopostergirl.com/2022/04/28/homemade-sublingual-magnesium-spray-and-topical-magnesium-oil/
This post is based on years of recordings/notes from my visits with Dr. Cheney and his public talks. I’ve done the best I can to present this clearly and simply, but as he’s no longer here fo...
There’s good news herein about a new med, but I’m going to do a little rationalizing first of why I’d never tried it. People with ME will understand why I didn’t try to switch practitione...
https://nopostergirl.com/2022/04/07/the-power-of-pyridostigmine/
CW: Diet culture BS, weight loss/gain, dieting talk. A few weeks ago, a new doctor asked, “So has your weight always been pretty stable?” I stammered something out, but when Chimp and I wer...
https://nopostergirl.com/2022/03/31/a-problem-i-didnt-want-back/
Last summer, we learned from Chimp’s institution that he was going to be expected to teach in person during the fall semester, possibly-immunologically-vulnerable-spouse be damned. The good thi...
My dad died suddenly last summer, five days before my birthday. I received a lot of kind expressions of sympathy, and to some people who remarked on the suddenness of his death, I said, “It�...
https://nopostergirl.com/2022/03/17/that-silver-haired-daddy-of-mine/
I’m usually on edge Memorial Day weekend. That’s when I fell ill in 2004; ever since it has felt snakebit. Most years that’s just my anxiety. In 2021, the last moment that everything was re...